The Atypical HUS India Foundation

The Atypical HUS India Foundation

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Thursday, July 3, 2025

aHUS Simplified - Webinar Summary

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Here is a summary of what was discussed in the webinar we held on 30 June: Dr. Arvind Bagga (Pediatric Nephrologist, Indraprastha Apollo ...
Wednesday, July 2, 2025

Webinar Recording: aHUS Simplified for Patients

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We had an overwhelming response for the first aHUS webinar we held on Monday 30 June. For those who missed it and wish to watch it or if you...
Saturday, June 21, 2025

Our first webinar for aHUS Patients!

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The Atypical HUS India Foundation is hosting its first webinar. This event is for aHUS patients and their families, aiming to simplify the c...
Wednesday, May 14, 2025

Share your aHUS story

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Tell the world your story! The Atypical HUS India Foundation invites patients and their family to record short videos about their story - ho...
Sunday, May 11, 2025

The importance of a database of aHUS patients in India

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If you ask someone what is the number of aHUS patients in India, the only answer you will get are 'guesstimates'. No data exists on ...
Saturday, January 18, 2025

Soliris gets approval for sale in India

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Soliris (brand name for the drug Eculizumab from Alexion Pharmaceuticals, now acquired by Astra Zeneca) was finally approved by the Indian ...
Sunday, November 10, 2024

Delhi High Court Judgement on Rare Diseases

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  In the first week of October, the Delhi High Court heard several petitions together that were filed by patients afflicted with a rare dise...
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