Yay! We finally have a Day!
Yes, the first ever International aHUS Awareness Day will be held on 24 September 2015. This will be a day to raise awareness about this disease, give a special shout for all those people affected by this disease. An extract from the announcement about this:
"The date is to be 24 September 2015, which was selected because it falls within the week that, 60 years ago next year , an article appeared in a clinical publication in Switzerland which contained the term Haemolytic Uraemic Syndrome for the first time. HUS was given its name by Conrad von Gasser,and his research team, to describe the illness they had been studying which caused blood clotting, anaemia and kidney failure, and which seemed to follow a gastric infection in some cases, or happened to several family members at different times in other cases."
Here is the link to the announcement from Len Woodward on rareconnect.
Yes, the first ever International aHUS Awareness Day will be held on 24 September 2015. This will be a day to raise awareness about this disease, give a special shout for all those people affected by this disease. An extract from the announcement about this:
"The date is to be 24 September 2015, which was selected because it falls within the week that, 60 years ago next year , an article appeared in a clinical publication in Switzerland which contained the term Haemolytic Uraemic Syndrome for the first time. HUS was given its name by Conrad von Gasser,and his research team, to describe the illness they had been studying which caused blood clotting, anaemia and kidney failure, and which seemed to follow a gastric infection in some cases, or happened to several family members at different times in other cases."
Here is the link to the announcement from Len Woodward on rareconnect.
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