Rare Disease Day is commemorated every year on the last day of February. From the Rare Disease Day website:
"The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives."
What can you do on Rare Disease Day?
A lot!
For starters, you could change your Facebook and Twitter profile pictures to the Rare Disease Day logo which is available here. This will raise some questions among your friends and family about the day and you could explain.
You could also write a blog post on the topic.
There could also be a Rare Disease Day event in your city which you could participate in.
There is very little awareness about rare diseases in India. It is important for people to know about this. If people get to know, it would be that much easier to convince law-makers and people in important, influential positions to bring about change that would help patients afflicted by rare diseases.
Here is a link to the poster of this year's Rare Disease Day.
"The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives."
What can you do on Rare Disease Day?
A lot!
For starters, you could change your Facebook and Twitter profile pictures to the Rare Disease Day logo which is available here. This will raise some questions among your friends and family about the day and you could explain.
You could also write a blog post on the topic.
There could also be a Rare Disease Day event in your city which you could participate in.
There is very little awareness about rare diseases in India. It is important for people to know about this. If people get to know, it would be that much easier to convince law-makers and people in important, influential positions to bring about change that would help patients afflicted by rare diseases.
Here is a link to the poster of this year's Rare Disease Day.
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