Thursday, January 19, 2017

Address to the United Nations opening of the NGO Committee for Rare Diseases

Founder of Atypical HUS India Foundation, Kamal D. Shah spoke (via video) at the United Nations opening of the NGO Committee of Rare Diseases recently. The committee aims to address issues pertaining to rare disease patients across the globe.

Shah spoke about the issues of access to drugs in developing countries. Shah also said that the work of the committee can help patients from countries like India. Here, patients did not have access to drugs that can cure them even though the drugs were available elsewhere in the world.

This is a picture from the event.

1 comment:

  1. namaste sir..
    I am gourav Sharma, my sister is suffering from HUS. right now she is admitted in fortis vasant kunj delhi. please guide me about this diseases and it's treatment. my number is 9413885837. I am very much in need your valuable advice.thank you