Being diagnosed with Atypical Hemolytic Uremic Syndrome can be quite unnerving. You are told it's a very rare disease. Chances are that you have never heard of the disease before, in your life! A quick search on the internet can also reveal some disturbing information. However, things have changed in the past few years in the management of this disease and a lot more is known now than ever before.
In India, especially, we have more reason to feel lost and worried as there is so little support available. This is where we step in. The Atypical HUS Foundation of India. We are are a group of patients, family members and most importantly doctors who have dealt with this disease and in fact, are dealing with the disease every minute, hour and day. We are here to help! All you need to do is to reach out. See the Support page for how you can do this.
Never give up! Even with this ultra-rare disease, we can help each other. Alone we are rare, but together we are STRONG!