Often beyond all the news and information, real patient journeys get hidden. These journeys are however the real story. Individual stories of pain, suffering and yes - even in the midst of all the despair - hope. We, at the Atypical HUS India Foundation are bringing to you such stories where patients have fought back to take control of their lives. Click on the links below to read, see and hear about their journeys first-hand from the patients or their families.
Please reach out to us if you are willing to share your journey with other patients. Drop us an email at ahusindia@gmail.com
The aHUS diagnosis shattered our dreams - Arjun’s Journey with aHUS
Video from an aHUS Patient from Mumbai